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Polio Quebec is a non-profit organization (NPO). It is thanks to the contribution of its members, donations and a subsidy from the Ministry of Health and Social Services (MSSS) that the Polio Quebec Association is able to disseminate information and offer services to its members and to all victims of Post-Polio Syndrome (PPS). On an ad hoc basis, the Office des personnes Handicapés du Québec (OPHQ) also supports specific projects such as the redesign of the website and the celebration of the 25th anniversary.
Goals
Les objectifs poursuivis par Polio Québec sont les suivants :
- Advocate for the rights and interests of people affected by polio.
- Raise awareness and inform the public and the medical community about polio and post-polio syndrome (PPS).
- Ensure that these people have access to the care and services provided by the health system.
- Support people affected by polio and develop strategies to improve their quality of life.
- Encourage and support research on the treatment of post-polio syndrome and its consequences on the daily lives of people who suffer from it.
- Develop partnerships with various organizations.
Mission
The Polio Quebec Association's mission is to help people with polio and post-polio syndrome. In this perspective, Polio Quebec aims to be the best source of help for these people.
Services
Polio Quebec offers various services:
Information : Information brochures on post-polio syndrome.
Communication : Publication of the Folio Polio bulletin, distribution of the Flash-Info-Rapide electronic bulletin , website, Facebook page, Twitter news feed.
Reference: Post-polio clinic, government services, other organizations…
Support for bringing together members who want to discuss ways to improve their way of life.
Target audience
Polio Québec est au service des personnes :
- who have had polio or suffer from Post-Polio Syndrome (PPS)
- who know a relative or friend with polio or its sequelae
- who want information about polio and PPS
- who contribute to the defense of the rights of people affected by Polio and PPS.
board of directors
The proper functioning of the Polio Quebec Association is made possible thanks to the joint efforts of many people.
Polio Quebec is run by a Board of Directors made up of volunteers, members of Polio Quebec. Nine (9) are elected by the General Assembly and one (1) is co-opted by the Board of Directors.
The members of the board of directors for the year 2022-2023 are:
Mona Arsenault President
Nicole Gagliardi
Vice-President
Chantal Mallen
Secretary
Azeddine Sahnoun
Treasurer
Roland Larivière
CA Board member
Mary Benedek
CA Board member
Helen D′Orazio
CA Board member
Adriana Venturini
CA Board member
Mohamed Zaidoune
CA Board member
Monique Vigneault
CA Board member
Medical advisors
The Association benefits from the constant support of a resource from the Montreal Neurological Institute and Hospital who acts as a medical advisor to the Board of Directors, without however being a member. Since 1998, Dr Daria A. Trojan has given us the benefit of her expertise and keeps us in contact with the Clinique Post-Polio team. In 2014, Ann Robinson stepped down from the board to act as second medical advisor.
